Hmmmm


It’s taken a few days for me to process the results of my husband’s bone scan.  It was, and still is, a devastating result.

At the meeting with the Oncologist and prior to having his most recent chemotherapy session, my husband complained about the persistent pain in his left shoulder.  In early January he had been for an x-ray and CT scan to access his progress.  The Oncologist had reviewed the two scans and in our meeting stated that it appeared that the issue in the shoulder was arthritis.  As the conversation continued the Oncologist stated that although nothing had “popped” on the CT scan he could, with the simple click of a button, order a Bone Scan – if that was what my husband wanted.  This is how the Bone Scan came to be.

We had met with the Oncologist on a Tuesday, and a Bone Scan was set for the following Tuesday.  Two days after our Tuesday meeting with the Oncologist my husband had his chemotherapy treatment using a new chemo drug, Docetaxel.  This chemo drug can act as a bone marrow suppressant (http://www.cancernetwork.com/oncology-journal/radium-223-vs-ebrt-multiple-painful-bone-metastases-data-favor-radium-223). “Because docetaxel is a cell cycle specific agent, it is cytotoxic to all dividing cells in the body. This includes tumour cells as well as hair follicles, bone marrow and other germ cells.”  (ref: Wikipedia)  Four days later he went for his Bone Scan freshly juiced with Docetaxel.  I can’t help but wonder if this influenced the results.

At our meeting with the Radiologist she showed us pictures comparing my husband’s first Bone Scan (in July) with his second Bone Scan (in January).  Prior to viewing the pics I asked the Radiologist if I would be shocked – her simple reply was “yes”.  I was, we were, the image highlights (hotspots or growth) were so widespread that I couldn’t fathom how my husband could be sitting upright in a chair and not writhing in agony.  Anyway, we were at a loss for words and just got through the rest of the appointment.  In retrospect I wonder if we should have discussed the timing and type of the chemotherapy my husband had just received.  I don’t know that the radiologist was aware of this aspect of my husband’s treatment, I would hope so, but I have learned never to assume anything.

As a result of our meeting with the Radiologist my husband was advised to have some radiation to address the pain in his shoulder/neck area and a subsequent appointment was made for today.  However, we cancelled the appointment based on our concern about the veracity of the Bone Scan as well the risks identified with the selected radiation spots.  We also have learned that Paget’s Disease runs in the family. We plan on waiting until Monday when we can have a meeting with our GP to discuss all of our concerns before we decide on any more radiation.  We also need to ensure all information is conveyed to our Oncology team (including the Radiologist) so they are making the best and most informed decisions for my husband with respect to his treatment.

That’s where we are at.  It’s confusing and frustrating because we just don’t know what to do next.  Now my sister-in-law is another story, again complications and frustrations all around.  She deserves a full blog on her issues – which I will work on getting out today.

2 comments on “Hmmmm

  1. Jenny I’m so sorry, how do you both even take in what has been said. How is your husband? How are you too? I think you are right consultation with your family doctor before making informed decisions. I do know exactly what you are going through, however it still breaks my heart.

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    • I suspect we are in denial to be honest. Yesterday was a good day so we made the decision to go to the Opera. It was about an hour and a half drive to Toronto and then back in the same day – but worth it. Today hubby is tired but pleased that he was able to go. Today we are waiting to speak with the doctor and see if she can provide any insights into the most recent scan. You can be sure I will continue to vent on my blog – it’s an amazing release and I get to chat with people (like you) who are living this experience. Awesome woman you!

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